Founded in 1978, the Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation and a leading force in the fight to end NF. The Children’s Tumor Foundation’s mission is to drive research, expand knowledge, and advance care for the NF community.

The NF Network (formerly NF, Inc.) is a non-profit 501(c)(3) organization and was founded in 1988 by a group of people who were in some way affected by neurofibromatosis. They are the leading national organization advocating for federal funding for NF research and building and supporting NF communities. The NF Network’s goal is to eradicate the health issues, pain, isolation and uncertainty that the diagnosis of NF inflicts. The NF Network provides opportunities for local NF organizations to share experiences. The network is a dynamic and growing open space for shared resources, development of new tools, and creation of innovative programs. It brings together groups from around the country to speak as one voice on national issues.

The Littlest Tumor Foundation is committed to strengthening NF families, building compassion, advancing NF research, and empowering the next generation of NF leaders. We develop and deliver impactful programming including the NF Family Wellness Retreat, the NF Young Adult Leadership Program, and the NF Collective. Since 2012, we have built a successful bipartisan model that supports federally funded NF research. We promote Neurofibromatosis awareness daily. Through social media, our NF Congressional Briefing, collaborations, events, and using our voices online, at symposiums, and on television and radio, we work towards awareness, prevention, and – someday – a cure.

NF Midwest is committed to improving the lives of children, adults, and families impacted by neurofibromatosis. Our continued focus and foundation is on Clinics, Awareness, Research, Education and Support in the states of Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri.

NF patients typically see various specialists and seek diverse medical treatments, making it costly, even with insurance. Seventeen22‘s goal is to help these families with some of these financial costs.

The Texas Neurofibromatosis Foundation® a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder. Their mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.

NF2 Biosolutions non-profit organization seeking a cure or preventative treatment for NF2 by vigorously supporting and advancing existing and next-generation biomedical technologies, such as gene therapy and immunotherapy.

Since 1988, the Children’s Brain Tumor Foundation (CBTF) has supported families affected by brain tumors with comprehensive assistance from diagnosis through all stages of the journey. Their mission is to ensure that every family facing this challenge is supported and uplifted, enhancing their quality of life with diverse and dedicated programs and resources for every stage of their journey including Emotional and Peer Support, Scholarships and Grants, Retreats and Camps and Creative and Recreational Activities.